Alerts:  Nov. 12, 2024: Pertussis (whooping cough) outbreak confirmed in Spokane County. SRHD urges parents and pregnant people to vaccinate. Read the press release.

Family Support & Resources

Children & Youth with Special Health Care Needs (CYSHCN)

Overview

Family support can be vital in providing the emotional needs required to care for a child with special health care needs. There are parent organizations, support groups, and financial resources available as well as resources that provide additional knowledge regarding the child’s medical condition and special needs.


Family Support / Support Groups

Parent to Parent of Spokane County

Name Website Phone #
211 211.org 211
The Arc of Spokane arc-spokane.org 509.328.6326
Department of Services for the Blind dsb.wa.gov 509.456.2933
Parent to Parent arc-spokane.org/p2p 509.328.6326
Partnerships for Action, Voices of Empowerment (PAVE) wapave.org/ 509.570.8512 or 800.572.7368
Informing Families informingfamilies.org/
Downs Syndrome Family Network dsfamilynetwork.org/ 509.638.9550
Down Syndrome Diagnosis Network dsdiagnosisnetwork.org/
Email: info@dsdiagnosisnetwork.org
612.460.0765
Down Syndrome Connections NW dsconnectionsnw.org/ 877.733.3955
Epilepsy Foundation Northwest
epilepsynw.org 206.547.4551 or 844.721.3369 (toll free)
Spina Bifida Advocates of Washington State
sbaws.org/
888.289.3702
Family & Care Givers Brain Injury Support Group (now called Brain Injury Alliance Washington)
braininjurywa.org/supportgroups.php 206.467.4800
GriefSharegriefshare.org/countries/us/states/wa/cities/spokane800.395.5755
Spokane Hearing Oral Program of Excellence (HOPE)
spokanehope.org/509.868.0044
Muscular Dystrophy Association mda.org/ 509.325.3747
Northwest Autism
nwautism.org 509.328.1582
Passages - support for parents of children or adolescents with a mental illness passages-spokane.org 509.892.9241
Joya Child & Family Development joya.org/
509.326.1651
Spokane MISS Chapter-MISS Foundation missfoundation.org/supportgroup/spokane-miss-chapter/ 509.309.3314
Stand for Children stand.org/washington
Email Devony Audet
Stand for Children - Washington Facebook Page
206.632.7451
You too? Support in Spokane for Parents of Kids with Special Needs You too? Facebook page
Special Kids of Spokane Special Kids of Spokane Facebook
Parent to Parent of Spokane County Parent to Parent of Spokane County Facebook
Parents Empowering Parents SpokaneParents Empowering Parents Spokane Facebook page
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